This article here describes in a nutshell what we live with with Dyl every single day.
the last few weeks have been incredibly challenging to say the least. The help on the PS front has all but come to a screeching hault (minus a few dedicated individuals) thanks to Dyl's behaviors *not improving* so to speak.
I have so much to update on, and I KNOW I will have time next week to expound on some of the things I have been reading, learning and discovering in his case.
Asperger's is such an incredible thing to understand, I have so much to tell/share I can hardly contain myself.
For now we have major house renovations going on, and I have Dyl's room to finish painting tonight :) If I have time Ill share pics of it.
Friday, May 28, 2010
Tuesday, May 18, 2010
Currently reading...
Jenny McCarthey's louder than words about her journey to the Dx of her son's autism.
So far it's pretty good, i got past page 60 just last night.
I'd love to meet her IRL and pick her brain on starting that school here in our city....this thought is never far from my mind, wanting that for Dyl and the other kids out there like him.
So far it's pretty good, i got past page 60 just last night.
I'd love to meet her IRL and pick her brain on starting that school here in our city....this thought is never far from my mind, wanting that for Dyl and the other kids out there like him.
Thursday, May 13, 2010
Yesterday...
Dean put the kids to bed night before last and forgot to give Dyl his meds.
So yesterday at 11;30 I got a call from the school telling me to come get him because he wasn't wanting to work and he had called the teacher a name (or three actually).
Normally it's my policy to tell the school that i will not take him home, but yesterday due to him having missed his meds i felt it was best. Never the less i once again felt the pangs of wanting for him.
It is a great hope of mine that he could somehow, someday be in a school that could actually handle this sort of thing versus calling me AND then expecting me to come pick him up and take him home. The only other answer they have for this is to keep him and put him in detention. Not very effective or creative in my book.
Ya know...I get that they are not trained to handle this sort of thing which is half my battle. I really want to look into getting a school started here like the one up in Garden City, problem is I don't have the first clue as to how to do that or if it's even something i'm qualified to do. I see the need, not only for him but I know there has to be other kids either his age or younger/older that I'm almost positive have the same needs.
He of course spent the day hanging out not doing much besides bugging me and obsessing about his books :) He expected me to drop everything and take him to the library at one point and I put my foot down and said no. Thankfully there wasn't a huge meltdown over that one.
In other news...the bedtime battles are becoming ridiculous. he has a set bedtime yet everynight tries all e can to not adhere to it.
Last night he was told 9pm in bed with all matters done for the day, and at 9:11 he snuck down the stairs to get a snack...this is one of those things that falls into the *before 9pm* category, and when i reminded im and told him to put the cereal bowl down he cried saying he was hungry (not trying to be mean here, but he always has this major excuse for doing something he flat out knows is wrong) I said too bad put it down and go to bed to which he replied with a few choice words and about how much he hated me. *sigh* I called him back and had him sit on the steps and told him point blank I wasn't going to hear that and he now gets 8:30 bedtime tomorrow.
Somedays with him are like this....well most days are like this I should say. Constant drama and chaos, with the exception of times sandwiched in where he is happy and going with the flow (this usually involves him being satisfied with something he wants and has acquired). Is it any wonder I feel so stressed out at times?
So yesterday at 11;30 I got a call from the school telling me to come get him because he wasn't wanting to work and he had called the teacher a name (or three actually).
Normally it's my policy to tell the school that i will not take him home, but yesterday due to him having missed his meds i felt it was best. Never the less i once again felt the pangs of wanting for him.
It is a great hope of mine that he could somehow, someday be in a school that could actually handle this sort of thing versus calling me AND then expecting me to come pick him up and take him home. The only other answer they have for this is to keep him and put him in detention. Not very effective or creative in my book.
Ya know...I get that they are not trained to handle this sort of thing which is half my battle. I really want to look into getting a school started here like the one up in Garden City, problem is I don't have the first clue as to how to do that or if it's even something i'm qualified to do. I see the need, not only for him but I know there has to be other kids either his age or younger/older that I'm almost positive have the same needs.
He of course spent the day hanging out not doing much besides bugging me and obsessing about his books :) He expected me to drop everything and take him to the library at one point and I put my foot down and said no. Thankfully there wasn't a huge meltdown over that one.
In other news...the bedtime battles are becoming ridiculous. he has a set bedtime yet everynight tries all e can to not adhere to it.
Last night he was told 9pm in bed with all matters done for the day, and at 9:11 he snuck down the stairs to get a snack...this is one of those things that falls into the *before 9pm* category, and when i reminded im and told him to put the cereal bowl down he cried saying he was hungry (not trying to be mean here, but he always has this major excuse for doing something he flat out knows is wrong) I said too bad put it down and go to bed to which he replied with a few choice words and about how much he hated me. *sigh* I called him back and had him sit on the steps and told him point blank I wasn't going to hear that and he now gets 8:30 bedtime tomorrow.
Somedays with him are like this....well most days are like this I should say. Constant drama and chaos, with the exception of times sandwiched in where he is happy and going with the flow (this usually involves him being satisfied with something he wants and has acquired). Is it any wonder I feel so stressed out at times?
Tuesday, May 11, 2010
Dyl is doing good.
Everytime i say that I have to prep myself to 8keep fingers crossed* so it seems.
At times tings level out and there are no major direct issues with him or surrounding him , and right now is one of those times. For that I am incredibly grateful.
That being said, we will very shortly be faced wit the middle school enrollment and next year him attending. This scares the ever living daylights out of me. This MS has a reputation already in my mind, being it was the main reason for me pulling my 15 yr old out and homeschooling her for the last 16 months versus keeping her there. She is now headed into HS in the fall as a freshman , and not only is she caught up academically but she is actually slightly further ahead (wen I pulled her she was barely a 5t grade level in math , social studies and reading/English).
Because of that I am internally dreading the day that Dyl sets foot in there. The bullying was worse there for my daughter as well, including some done by a teacher (that was the straw that broke the camels back in terms of pulling her last year) so not only is that a huge concern, but the overall difference in terms of changing classes, having more than 1 teacher to train (and yes I literally train them on ow to deal with him because sadly teachers these days are often times ill equipped with the knowledge and skills to handle kids with asperget's period). As if I don't have enough on my plate :/
My hope to to have everything else in order by fall so I can really focus on helping him make the transition better.
In the meantime we continue to work wit him on relating to and treating others appropriately. Dyl's biggest rival is himself and with a close second comes is closest sib Nate who is 10 and has a major case of ADHD. Nate is a very funn easy going (little) big guy, but he is going through that stage that Dyl is growing out of. Ya know, that wonderful stage of "I don't have to listen, behave, act nice, do what you say, listen or even like anything about you or that you say to me because I say so , I'm in charge and I'll do what I want" yeah , that stage lol. Because of that, both of their issues and the ever increasing testosterone from tese 2 pre teens, I'd like to take them out back like in the old days on a daily basis if you kwim LOL. I'll describe an episode later when I have a minute. My days are currently filled with spring projects and once those are done time will allow for more blogging.
At times tings level out and there are no major direct issues with him or surrounding him , and right now is one of those times. For that I am incredibly grateful.
That being said, we will very shortly be faced wit the middle school enrollment and next year him attending. This scares the ever living daylights out of me. This MS has a reputation already in my mind, being it was the main reason for me pulling my 15 yr old out and homeschooling her for the last 16 months versus keeping her there. She is now headed into HS in the fall as a freshman , and not only is she caught up academically but she is actually slightly further ahead (wen I pulled her she was barely a 5t grade level in math , social studies and reading/English).
Because of that I am internally dreading the day that Dyl sets foot in there. The bullying was worse there for my daughter as well, including some done by a teacher (that was the straw that broke the camels back in terms of pulling her last year) so not only is that a huge concern, but the overall difference in terms of changing classes, having more than 1 teacher to train (and yes I literally train them on ow to deal with him because sadly teachers these days are often times ill equipped with the knowledge and skills to handle kids with asperget's period). As if I don't have enough on my plate :/
My hope to to have everything else in order by fall so I can really focus on helping him make the transition better.
In the meantime we continue to work wit him on relating to and treating others appropriately. Dyl's biggest rival is himself and with a close second comes is closest sib Nate who is 10 and has a major case of ADHD. Nate is a very funn easy going (little) big guy, but he is going through that stage that Dyl is growing out of. Ya know, that wonderful stage of "I don't have to listen, behave, act nice, do what you say, listen or even like anything about you or that you say to me because I say so , I'm in charge and I'll do what I want" yeah , that stage lol. Because of that, both of their issues and the ever increasing testosterone from tese 2 pre teens, I'd like to take them out back like in the old days on a daily basis if you kwim LOL. I'll describe an episode later when I have a minute. My days are currently filled with spring projects and once those are done time will allow for more blogging.
Saturday, May 1, 2010
Moving over here....
I made the decision this week to move my blog for Dyl over here. I was having trouble finding the time (haha) to remember to blog seeing as it was 2 separate accounts. Plus I really wanted to have a blog called I love Dyl Pickles. All of my kids have cute nicknames we call them, Dylan started out as Pooka (think cute puppy dog in the movie Anastasia) but in the last few years we have transitioned to Dyl pickles. I personally love a good dill pickle (homemade preferred) and have all my life even as a kid I would eat them by the jar full. They are crunchy, tangy juicy and just a tad bit sour. Kind of like my Dylan.
I am hoping that having moved this over here, i'll be more inclined to post. I always have lots to say and share about our journey with him, and more and more i find myself wanting to tell others...not only for my own personal therapy, but also to help others who are in the same type of situation. I will delve into this more later.
Thanks for stopping by and please subscribe to I know your out there reading, thanks!
I am hoping that having moved this over here, i'll be more inclined to post. I always have lots to say and share about our journey with him, and more and more i find myself wanting to tell others...not only for my own personal therapy, but also to help others who are in the same type of situation. I will delve into this more later.
Thanks for stopping by and please subscribe to I know your out there reading, thanks!
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